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Appeal of Nastya's Mom:

Please, help to my doughter. Give her a chance to live!!!

Hello, my name is Olesya. I'm a mother of 10 months old girl Nastya. My doughter Kanunnikova Anastasya Pavlovna was born on time being completely healthy girl with weight 6.92 lbs and height 1 ft 7 inches 7 Dec 2011. At 2 months old the baby fall ill with focal confluent pneumonia. About 4 months, she began appearing chest deformity. At 6 months the baby get dyspnea sympthoms again and we were taken to pulmonology department at No.2 Children's City Hospital . During a month, they had made neurology and pulmonology surveys and diagnosed with Werdnig-Hoffmann disease (later disproved). Then, we had cured the lungs and had checked out being on the mend. District pediatrician offered us to give the child to special orphanage (i.e. child hospis) and get a flat refusal from me and my husband to this offer.

After 10 days there began a fever heat about 40 C (104 F) and we were hospitalized at City Isolation Hospital No.1 where Nastya was taken to reanimatology. For 2 months, my doughter is still there. Depending of alternated antibiotic the temperature jumps from 37 to 39 C (98.6-102.2 F) and occasionally even goes to 40 C (104 F). For this 2 months, Nastya is on mechanical ventilation. Radiography shows the atelectasis on the right side. To date, all the reserve antibiotics they have had been applyed. On the last radiography there was a little better in the dynamics but Nastya is still on ventilation system. They switch her breathing to tube (meaning without mechanical) periodically, but she cannot breath independently for long time. And the temprature is still the same.

For clarify the diagnosis we have made the DNA analisis twice: in Molecular Medicine Center, Almaty (96% accuracy) and in Moscow (and later, authority physician from Chelyabinsk learned the medical papers and agreed with results of DNA tests). In both tests Werdnig-Hoffmann disease was disproved!!!! But our doctors don't want to trust to DNA tests and state all the same that Nastya got Werdnig-Hoffmann disease. Urgently needs to take away the child to a foreign clinic to determine exact diagnosis and specify the proper treatment!!

At this moment we need to collect $150000 to transportation Nastya to Korea on specialized aircraft, to diagnosis and possible treatment. This amount should be collected until January, while Nastya has a chance. There is a difficult financial situation in the famely. Nastya's mother Olesya is hailing from an orphanage and there is nobody who could help.

We asking to all people who care to respond to our pain. I really want to our little doughter could live and enjoy the life.

Bank details
DOLLARS:
Beneficiaru account KZ9092618023U5926001
Bebeficiary name KANNUNIKOVA OLESSYA
Beneficiaru bank name Kazkommertsbank, Almaty, Kazakhstan
Tax Registration Number 600420392759
SWIFT KZKOKZKX
Correspondent bank. Bank of New York Mellon, New York, USA, IRVTUS3N

EURO:
Beneficiaru account Z3692618023U5926003
Bebeficiary name KANNUNIKOVA OLESSYA
Beneficiaru bank name Kazkommertsbank, Almaty, Kazakhstan
Tax Registration Number 600420392759
SWIFT KZKOKZKX
Correspondent bank. Commertsbank AG, Frankfurt, Germany, COBA DE FF